I’m right now starting to do #DayInTheLife enjoy…

It’s nearly 3am, I can’t sleep AGAIN. Pain is at 8.3/10.

I have to be at a physio appt by 8:30am and then at college for 9:30. This is going to be interesting

Right, took me 45 minutes to organise my body into getting out of bed(sofa) this morning. Pain 8.2, completely exhausted 

Mum made me porridge for breakfast #yum On my way to physio now. Managed to get 3hours sleep.

Just parked up. I hate travelling in the car vibrations are very very painful along with the background noise. (Noise is painful and very distracting as my brain seems t have lost the filter that tells me what noise is important and what the just background noise)

Fortunately morning meds are kicking in, gonna need them, physio is a killer. Pain 8.1

Sat in physio waiting area. My head is getting fuzzier and fuzzier. 

My appointment is running at least 10minutes late. This 10 more minutes that I have to stay sat up & awake.

Physio done. Worked the left leg. Pain 8.35/10. On my way to college for BSL now

Forgot to pick up a wrist support from home so it’s going to be click city by me while I’m signing.

BSL done, arm and hand thoroughly aching pain level 8.3/10 waiting for dad to come pick me up then home for lunch&meds 

Lunch, cold left over pizza and tuna&sweetcorn on bread. Pain 8.4  (Image is slightly blurred due to a tremor in my right hand)

And now some grapes prepared by mum this morning. Then a nap I think.

Pain is on the up. If I can’t get to sleep I may have to take some emergency pain relief.

The emergency Pain Relief is effective But make my thinking capacity nonexistent I don’t have college tomorrow so I CAN take them. 

I can’t take The Emergency Relief On A monday/tuesday/wednesday because I have college the next day. If I take it I’m so brain fogged can’t go to college. 

Well, my “nap” lasted 4 hours. got woken up for dinner. Sausage casserole, I only managed half.

Woke up with a right headache. Pain 8.6/10. Have a rory cat to distract me though.  (picture is dark because light is intensely painful for me)

Having trouble supporting my head today. Fatigue is massive. Tinnitus here aswell. Pain 8.65

Not watching #panorama tonight - it would make me too angry.

Pain 8.8/10 Taking Emergency relief before it gets worse. Will be off the planet soon if you want to ask me something do it now .

Having trouble talking. Emergency relief it makes it hard for me to work out which mouth movements make which sound. Each sound takes at least twice as long for me to make. 

This is one of the reasons I try not to take it, other problems forgetting to breathe, panic attacks, discoordination & brain fail. 

Just going to make this clear- the point at which my pain became unbearable was only 0.8 above my average daily pain level. 

Another problem with taking emergency relief meds - trouble swallowing. Not nice when you think you’re going to drown in movicol 

It feels like my head is being split in half, you know, hammer and chisel style. Pain was down to 8.2 but moved up to 8.35 

I also appear to have someone poking hot spikes into my right side. Keep forgetting to breathe. My energy is just gone

The room is spinning and I feel on the verge of throwing up. My body has gone stiff&heavy&jelly like at the same time 

Lying on the sofa(doubles as my bed for some of the time)wondering if sleep will actually come tonight.

It’s this sort of night when I’m prone to sit&think, stew, worry&stress about things. The future is one of the big broad topics that pops up to scare me, that and worries about my friends. 

Today I’ve been tweeting a #DayInTheLife, Well november is #crpsawareness month. This is just a little bit of what it’s like for me.